My server has been down for a few days. During one of the storms passing through Jen heard a zap and the next thing I knew my computer connection went down. So, today after telling Jess that he should help me fix my computer (which he was very good at it) something mysteriously showed me the way to our central networking box and I was able to fix it. Thank you, Jess! So, we have had very good days and a few hard nights. He seems to wake up a lot with a frightened look on his face. One of us sleeps in his room. We wonder if he is reliving the accident.
We found out Jess was allergic to the formula the hospital was using in his feeding tube. The first two ingredients were sugar and corn syrup. He was having trouble breathing after every feeding so we are now giving him our own special formula with the help of our nutritionalist Daniella Chace. She is awesome. The therapies have been going well. Tammy the PT has had him standing with our help and John OT is reconnecting his movements to feel his own body again. Chris and I are thankful for Jen's wonderful help. Chris has been able to go to work a few hours a day and I have been to my office for two hours a day. We don't want her to leave. We have had Jess holding and dropping a ball, moving his legs on command and he is making more noises with my hopes that a loud "mom" will emerge.
We are feeling the support, the love and the hope that everyone is generating for Jess and we are staying strong to attend to whatever is necessary for his recovery. Some moments are easier than others. With love...
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