I keep debating if I should continue updating this website for Jess. I guess I do it, for Jess, so that someday he can recall what happened to him in these 7 months since his accident and he will get to read all of the wonderful messages from friends, family and people who care. And, everyone does keep thanking me for keeping them updated on his progress. I just wish one day when I start typing I could say that he is awake and responding. He is doing new things every week and without really knowing, we assume they are all good even though the appearance does not always seem that way.
We are traveling to Salt Lake City tomorrow for an appointment with the doctor who is the head of the Primary Children's Hospital Rehab and also the University of Utah Rehab. I wanted to create a relationship with a doctor who has a lot of experience with someone with a severe traumatic brain injury so that when Jess is ready to enter the world or rehab we have a good contact physician. We do hope that it will be soon. The hardest part of all of this is that we could take Jess to the best hospital in the world and it may not be any better than what we are doing for him right at home. If he is not ready to respond to the therapists there is nothing they can do. It is not like having a heart transplant or getting a new kidney...it is still waiting for his brain to heal. I keep getting asked how we are doing or how we get through each day. I really don't know. It is about surviving and taking care of someone that I love and cherish more than life itself. I try not to look into the future and to forget the past. Each day I just wake up looking forward to the hug I so long for from my beautiful son. I know that something good has to come out of this tragic event that has happened to such a wonderful young man. He has more more to teach us.
Monday, January 10, 2005
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