It is so strange that the Cleveland Clinic has not returned my phone calls. They were the ones who called me to alert me of the process they were starting to review Jess' records. Oh well, I guess there is a reason.
Jess was smiling a lot yesterday. He seemed to be in a very good mood. And then, I got him home from horseback riding and therapies and got him on his bed. I walked out of the room for a second and from the kitchen I heard the bell on his bed ringing so I ran in there and he was having a small seizure. I put the bell on his railing for that reason. I hurried to get his medicine and he stopped! Thank goodness! He continued to smile later in the evening and seemed just fine. Sometimes we think he goes into a seizure because he wants to do something and gets too frustrated. Do you blame him?
Chris has worked every day for the last 7 days getting the nordic and snowshow trails ready for the Special Olympians. The event started today. He feels very honored to be able to help. This is a trial run for Idaho to host the National Special Olympics next year. It will be a wonderful event. I wish Jess could participate.
Please keep up the positive thoughts for Jess and thanks again for checking in.
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3 comments:
Pam,
Thanks for posting the link to the article on Deep Brain Stimulation. It was interesting. I feel for you deeply and wish your phone calls would be answered. Keep being the squeaky wheel! Love Judy Stoltzfus
Hello everyone and hello Jesster buddy man, buddy dude. Yep, sounds like me, doesn't it? Just stopping by and saying hello for the first time in a little while. Hope all is well and good, as it is here. Kind of bored at times, but I can keep myself occupied pretty well. If y'all want to leave me a note, my website is curtisland.50megs.com (I got a guest book). It might be easier to get the word out if Pam posted it on the next post, so Pam, could you plese do that? Thanks much, and I'll see you all later!
Everyday, everyday, everyday I start everyday asking God to help you stay strong and to bring Jess back to the WAKING LIFE!! I know it's hard to wait and wait for Cleveland Clinic, but remember we don’t want to hear from them until they are ready, then it will be fast and fearless. Let them perfect this on the ones that go before. I can be patient. Be patient with me, OK?
I sure hope Curtie is doing ok. and Linda.
God bless Chris abundantly and repeatedly. Special Olympics huh? MAYBE just MAYBE there is a reason for that as well!! See if you can get Chris to 'troll' the crowds and maybe God's miracle is there with these very special people. One comment, one fragment of knowledge something ........................
I am here with you Pam, I did not let go.............what a life!! my feet hurt, yup the bones hurt. oh well aging.......
Go hug your Mom and be grateful you can do that, I can't. My Mom is 1800 miles away! Give Jess a head kiss for me and tell him I am still waiting!!
Love you
B
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