It looks like we are going to the Cleveland Clinic on April 12th. We had a conference call with one of the main doctors on the research team,
Dr. Kubu, and she gave us

a good idea of what the process will entail. The screening process will take 3 days and then we will know if Jess is a candidate for the surgery. She felt he had a good chance of being accepted into the two year research study. I won't go into what will be involved until we know for sure he is accepted. We feel very fortunate that they are considering Jess and will, as always, do anything we can to help him recover. We are driving to Ohio in Jess' van and travel trailer. Thank goodness we got it fixed up to accommodate Jess last summer. It will be a long drive but it will be nice to have our home on wheels so we can have all the things necessary to take care of him. I will have a laptop to keep you updated on our trip.
Because we may end up being gone for an extended period of time, mom helped us make the decision for her to go to an assisted living home in her hometown of St. Anthony, ID. We moved her there on Tuesday. Thank you, Marlene for the use of your horse trailer and Mikey for helping Chris load it! It is a nice place and I think she will enjoy the people and the comfort of knowing she is not alone. Her sisters and brother-in-laws live close so they will keep an eye on her. It was very emotional to leave her and we miss her! She had a hard time saying good-bye to Jess. She has been around him since he was born. As Mikey reminded me, they both spent a lot of time at her house after school when they were growing up...eating cookies and whatever other goodies she had to share with them. It seems like yesterday....
3 comments:
Huge Powerful Blessings go with you!! My angels arrange all that they need! My prayers continue for Jess' "reconnect" and return. Blessings and patience stay with your Mom.
Don't forget to keep us informed, enjoy your home on wheels, success upon arrival, safe travels and safe home.
Hugs and Love,
Barbara
Prayers and encouragement from California. I am proud of parents like you who are willing to do anything and everything for their child.Including your own mom having to make living changes. And you all pulling up a trailer and going. I really think you are all exceptional people. What you are having to do to help Jess isn't easy. Keep going and keep sharing. You're not only helping him but many others who will read about this treatment too.
The folks of Pearl Road United Methodist continue to send prayers and thrilled to hear of your coming to Cleveland. If we can do anything to help while you are in town -- please let us know! A safe journey back this way and know our thoughts and prayers are with you all! Love, Lou Goodwin
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