In fact, Paula just called me to say that Senator Mark Pryor called her to say the roof crush issue is going before the Senate on May 6th in Washington D.C. This is such wonderful news! This is how we can get action and how we can make a difference. She asked us if we could attend. I would love to take Jess but, oh my, the logistics are overwhelming. Where there is a will...there is a way, though, so we will see.
We have our airline tickets and are ready to take Jess to Cleveland next week. We will know on the 17th if he is going to be accepted into the 2 year study. I will be updating the website on the 23rd. Thank you everyone for the well wishes and prayers for our safe journey.
Jess has been doing well. His dad got him to blow out a flame the other day. He actually pursed his lips to blow which is a huge accomplishment. He also tried very hard to reach a ball that I tied on a string from the ceiling above his bed. You could see his concentration and effort to move his arm and open his hand to reach it. He has also been kicking his foot off of his foot rest on his wheelchair and raising his
2 comments:
HOORAY the Billboard!!
HOORAY!! To Judy for putting the absolute perfect peice of art above Jess' bed!! Yes, the animals will party on and dance all night when Jess is returned to us!
Hooray! Jess enjoyed Mikey's visit.
Good Luck in Cleveland, our prayers go with you!!
Barbara
The Billboard is awesome. I like the colors, it is attention getting.
The smiles on Jess's face with Mikey says allot.
See you in Cleveland, we're ready to help ! It will be Good.
Aunt Jenn
Post a Comment