I heard from one of the doctors at the Cleveland Clinic last week. She said they have postponed accepting Jess into their study. It does not mean he won't be considered again in the future, it just means they want a little more experience before they perform the complex procedure on him. We were disappointed but now I am trusting that everything is in right devine order and that there is a reason for the delay. We have learned it is better to go with the flow and are trying to look at the positive instead of finding another reason to be more depressed and sad. I always said I didn't know if I wanted him to be one of the first candidates. I guess someone was listening.
We are looking for another CNA or LPN to take Brandie's place in July. They need to be licensed, able to administer medicine, have good qualifications, not be afraid of seizures and comfortable with Jess' disabilites. Not asking for much, are we!
Summer is taking it's time getting here. We are anxious to get Jess outside more. He is healthy and hasn't had a seizure for awhile. We changed his medication so hopefully they will not come back. I just ordered a walking harness sling for him. We will try hooking him up to the ceiling lift in the sling, put weight on his legs and move him as though he is walking. We'll see!
This blog was created to replace the website http://jess.matey.1colony.com. We created this blog to keep friends and family updated on Jess' condition. Jess was the seat belted passenger in a car accident on June 17, 2004. He received a severe brain injury and is at home with his parents who love him and are waiting for a miracle. To leave comments click on the comments link at the bottom of the update, click on "other" if you don't have a google account and publish. We love to hear from you.
2 comments:
Hi Pam, Chris & Jess,
You are in my thoughts and prayers. It means a lot to me that our paths crossed, I feel blessed that I met you. ~Patty
Hi Matey Family,
I found Jess's website by way of Kevin and Olivia. My daughter had a TBI from a boating accident in July of 2006. Her name is Niki. I looked at all of your pictures and read about Jess. What a darling young man. He is the same age as Niki. Immediately I prayed for all of you as I understand the heartache of a parent when their child is hurt so badly. I will continue to keep you in my prayers. Know that GOD is with you always and is the great physician. I was always a "control freak" and have learned that I am not the one in control. What a tough lesson to learn. My prayers will be with you.
Sincerely, Cindy
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