December already!

I don't know where November went. We have been pretty busy with Jess home full time. We are doing all of his therapies here at the house except for horseback riding, of course. John, our OT, is helping us twice a week to get Jess in the walking sling. He has successfully moved his left leg but it takes so much effort. Tracy, our Speech therapist, is getting Jess to move a joystick to point at words. At first he could not control it but now he is moving it slowly to control where the pointer goes. Chris is still standing Jess whenever he can to keep his bones strong. I am up to 62 sessions on the neurofeedback program. We haven't had a seizure since November 11th. I can't get too excited because he usually has at least one a month. But I can sure hope for the best.

We are seeing a new doctor, Dr. Archie, here in town that also does acupuncture and prescribes Chinese herbs. We are starting Jess on some of the herbs to help the seizures next week. He is also doing a nutritional evaluation to make sure Jess isn't missing something from his diet. It is nice to have an alternative to the hard core seizure drugs that make him so non-responsive.

We had a nice Thanksgiving. Mom came over for a few days and Claudia, Jess' aunt, came over for dinner. Jess was excited to see them both. Holidays are still tough for us. I wonder if it ever gets easier.

We have kind of settled into a routine. Not exactly an easy one but it works. We keep waiting for Jess to just start talking or hold his head up or move his arms and legs without being asked. We do get that smile once in awhile, two blinks for yes and I still get three blinks for "I love you". We still can't help but ask "why" a lot and we still don't really get an answer. We have sure learned to appreciate the small things though.

Thanks for checking in...Pam, Chris & Jess

P.S. We are having a healthy chocolate tasting party tomorrow. It will be fun to see some friends, laugh and eat chocolate. We don't get out much so as I said the little pleasures are important. Stop by around 2:00 if you are in the neighborhood and learn how good chocolate can be for your health. We will have some packaged for Christmas gifts if you need an idea for someone. Click on our website Xocai Chocolate if you are curious. Christmas is only 18 days away! Oh my!