Again, it has been a long time since I have updated Jess' website. I am not sure if anyone even checks it anymore. It has been 5 1/2 years since his accident and he is still not walking and talking as we were so sure he would be doing by now. He just had a bout with pneumonia that immediately followed a seizure. We gave him antibiotics for a week and luckily it seems to have done it's duty. He was having small weird seizures for two days with a fever so we knew something was up. We were very worried and are so thankful in one respect that we could point it to a cause. The exray showed fluid in his left lung.
Jess is still doing all of the therapies and a couple of times this year he has gone up skiing on an adaptable ski sled with his dad and caregiver, Bryan. It seems like he enjoys the thrill of being on snow again. He so loved snowboarding. We're looking forward to watching the Winter Olympics this weekend.
I am still on my research journey of looking for new advancements in ways to help those with brain injuries. It is so complex, expensive and overwhelming. Our next venture may be to take Jess to a rehab facility in Phoenix. His sister Jamie is living there now so we could be close to her and in warm weather (the winters are so long and hard on Jess and I). I think he needs a little change and we need some new ideas. After 5 years the medical world doesn't have much hope in his recovering but what in the heck are we suppose to do with that information! I still hope that through music, art, computers or some passionate person who has that special connection with Jess we can find a sure way of communicating with him.
We are still so thankful for all of those who have not given up on him and for those that keep positive thoughts flowing our way. Chris and I are tired, frustrated, confused and so sad a lot of the time to be honest. We did not get to enjoy all of those fun years of watching him grow up into that awesome guy who had so many dreams and plans for his future. But most of the time we are ok and just thankful that he is our awesome son and that we are able love him more than anyone could imagine. Life seems to give all of us different challenges and I guess it's how we deal with them that matters.
Thanks for checking in and we wish all of you a better 2010!
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4 comments:
As always, my thoughts and prayers are with you all.
love, Amanda England
Yeah, an update on the website. Yes, you are all still in our thoughts and prayers. Very happy that Jess is doing better. Hang in there, Spring is truly on the way. Love, Jan Boyno
We all think about you all the time. Prayers and love is with you. Keep writing.
Love,Treva and family
I will never forget to check out your website!! I miss you guys! If you ever for any reason come through Bakersfield, let me know! (I know I know..why drive through Bakersfield, but I always have wishful thinking)!
-Crystal B.
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