Friday, October 21, 2005

October 21st, 9:00 p.m

This was an interesting week for Jess and I. Amanda was treated to a Cheryl Crow concert in Boise on Tuesday and Wednesday by her fiancee' so Jess and I hung out alone but together. We attended school on Tuesday and to be honest it was very difficult for me. All those energetic kids in the halls with so many questioning looks at Jess and I as we rolled down the halls to his three different classes. He did open his hand on the keyboard in his computer class and held a paintbrush in his art class. Jess tries so hard to participate and wants so badly to talk. I can't imagine how frustrating his world must be. We are lucky the law state he can attend school until he turns 22. At least he is around kids and feels their energy and he does get some speech, occupational and physical therapy.

Wednesday we drove to Twin Falls to attend a meeting regarding what Jess qualifies for from Medicaid. When Jess turned 18 he became an adult so we had to hire a lawyer to establish guardianship so we could make decisions for him. Medicaid has a waiver program called the Developmental Disability Waiver which is suppose to help people with disablities receive financial help with therapies and care. But, just like we found out with the insurances we purchased, they have so many rules and all of that fine print to make sure you can't recover any of what you contributed to for all of those years. It was amazing to sit in this meeting! And, nobody is really sure what the rules are but they make it clear that they can't bend them. I won't go into details but again I remind you to make sure you understand the policies you buy and beware of the system set up in our government that we all pay into. Where does all of that money go I wonder? When one door closes you just have to find another one that is open. And, trust. I liked these rules so I thought I would share them with you:

TEN RULES FOR BEING HUMAN
You will receive a body. You may like it or hate it but it is yours for the entire time...this time around.
You will learn lessons. You are enrolled in a full time informal school called life. Each day in this school you will have the opportunity to learn lessons. You may like the lessons or think them irrelevant or stupid.
There are no mistakes only lessons. Growth is a process of trial and error experimentation. The 'failed' experiments are as much a part of the process as the experiment that ultimately 'works'.
A lesson is repeated until it is learnt. A lesson will be presented to you in various forms until you have learnt it. When you have learnt it you can then go on to the next lesson.
Learning lessons does not end. There is no part of life that does not contain its lessons. If you are alive there are lessons to be learnt.
'There' is no better than 'here'. When your 'there' has become 'here' you will simply obtain another there that will again look better than here.
Others are merely mirrors of you. You cannot love or hate something about another person unless it reflects to you something you love or hate about yourself.
What you make of your life is up to you. You have all the tools and resources you need. What you do with them is up to you. The choice is yours.
Your answers lie inside you. The answers to life's questions lie inside you. All you need is to look inside and trust.
Last but not least, you will forget all of this.

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