We are not going to Michigan!

I forgot to mention that I did bring mom home the day after I got back from MN. She is really doing well. She uses a walker to get around the house and still tries to be independent. I have to keep my eye on her so she doesn't get too brave. My Aunt Lura and Uncle Homer who are in their 80's came up from CA to visit us the day after mom came home. They stayed for a couple of days and we enjoyed their company. And yesterday, Danny Moranz, a friend that Chris went to kindergarten with came to visit. He is riding his motorcycle (www.dansmotoride.blogspot.com) all the way across the country to South Carolina. He has some great pics on his website. It was great to see him, too.

I had a lengthy conversation with the a lady from the University of Michigan today. She said Jess was "not a good fit" for their program. It is designed more for someone who is farther along than Jess. She suggested we look into the Casa Colina in California. So, as usual, when one door closes you just find another that is open!

We had a conference call this week with Dr. Suter, the eye doctor in Bakersfield that we had examine Jess when we were there almost two years ago. Catherine, our OT from school, had sent her a video of Jess during therapy. We were hoping she could direct us going into the future. She was impressed at how well Jess was doing tracking and moving his eyes. We all feel he is ready for the next step to communicating but we are just not positive what that step should be. If I could just get help from a facility that works with a lot of traumatic brain injuries maybe we could find the key to helping him communicate. I can't tell you how frustrating it is not to be able find someone that knows what we should do. I refuse to believe this is all there is.

Jess has not been sleeping very well. He tries to sit up during the night and moans. He also grinds his teeth to get our attention. I tried everything I could think of to get him to sleep last night. We wonder what he is dreaming or thinking. It must be so frustrating to not be able to tell us what he needs. It is sure frustrating for us not to be able to help him. All we can do is talk to him and reassure him that we are with him and everything is ok.

Have a great weekend!