I have been quite busy for the last week. I had made a plane ticket to Minneapolis several months ago to see Joey run in his first triathalon on July 14th but did not think I could go on the trip due to mom's accident. Thankfully my family made it happen and I did get to go for 5 days with the help of Jamie, Brandie and Chris. Mom stayed up in the hospital so I wouldn't worry about her.
It was a wonderful trip and Joey did great! It was a bit hard for me to relax into a normal lifestyle since our lives have been far from normal for the last three years. I forgot what it was like to not be constantly worried about Jess and my mom's welfare. Everyone survived wonderfully while I was gone and Jess even gave me a smile when I walked in the door.
He has been doing well in therapies and he has been seizure free. I am checking on the possibility of going to the University of Michigan. They have an aphasia (loss of ability to speak or understand speech) program in which they can help Jess communicate. It is an intensive therapy program for 6 weeks. As usual, we will probably have to jump through hoops to get there. It would be a dream come true if we could have a better way to know what Jess wants and how he feels. Now, it is a guessing game.
Jess will attend high school for one more year and I can't believe it is a month away. I like him to be around kids his age so I am glad he will be back there soon. Brandie will be taking him this year. She is so good with Jess.
Well, that's all for now.
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3 comments:
GOOD MORNING PAM!!
I think you better tell Joey that something is goofy at the website. I have tried a couple times to post, after writing absolutely fabulous responses to you......then it doesn't 'accept' them or post them. Bummer. Anyway, I will try to replicate here and now. I AM SO HAPPY that you got 5 DAYS on your own. To sleep in ( I hope), to move around on your own schedule, to eat whenever YOU want to..........................sounds like a slice of heaven to me!! I hope Mom is healing well. Is she at the house now?
The pic of you, Linda, Jess and Curtie was great!! Curtie looks a lot like his mom, where Jess is a clone of Chris!!!! Remember how little these squirts were in kindergarden??
I think trying for U of M is a good idea, you'll know as you move forward if it is right for Jess. Can't believe that NO ONE can help with the computer thing.............a simple yes/no response would be so much help!!! I'm going to try to effect that.
Go enjoy your beautiful Sunday, fab summer weather with your family~~ here in our
breathtaking mountains. Before we know it, there will be snow again!!
Big love and prayers for your continued strength.
Barbara
Hi Mom,
Testing to see if the comments are working, since someone reported they are not.
Love you!
You write very well.
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