We are back!

Joey has created this new "blog" site for Jess. We are so lucky to have a computer guru in the family. I just hope I am in the right place to get this message posted!

I debated whether or not to activate a website again. But, I know there are so many wonderful friends and family that are wondering how our Jess is and how we are coping that I decided we needed to keep everyone updated on our beautiful boy because we are still in great need of all of that good energy you send our way. I don't know where to begin to tell Jess' and our story of where we have been in the last 6 months. So much has happened. It is hard to relay where we are with our thoughts and feelings. We are still, after 3 years, waiting for a miracle.

I will try to start back in September to give you an account of the events that have occurred since we last visited. Right after Daniel left, my dad got really sick and we had to life flight him to Boise. Mom and I drove to Boise. After a few days, we left him with my brother and Jamie and we came home so I could help Chris with Jess and mom could gather some things she needed. September 17th, the night we returned, Jess had his first seizure which lasted over 40 minutes. In the middle of the night, we called 911 because we were so frightened and did not know what to do. We spent a couple days in the hospital at his bedside. He was medicated heavily and was extremely exhausted for several days after the seizure. My dad remained in critical condition in Boise but after a few weeks was able to come home.

Jess has had 3 seizures since and they, along with the medication, have unfortunately slowed down his responses and the progress he was making. He was put on Dilantin and it made him so sleepy he could barely stay awake through any of his therapies or school. We decided to ween him off of it and...he had another seizure. The neurologist suggested a drug called Lamictal so for several months we had to give him both drugs because you have to ween a person off of a seizure medicine and the Lamictal had to be increased very slowly. At present he is on half of the "therapeutic level" that they want him on. He is starting to function better and is much more alert since we stopped the Dilantin. We made the hard decision to keep him at the lower level. It is a decision of having some "quality of life" as opposed to being so drugged that he is unable to respond to anything.

This is just the beginning of our journey since I last updated Jess' website. I will continue again soon. I better check to make sure this is indeed the right place to get this posted before I rattle on! Thanks for checking in on us. Love, Pam, Chris & Jess

New Site for Jess Matey

Hi Everyone,
We thought we would get with the times and provide Jess's information and updates through a blog instead of a website. I'm working on getting the historical information posted so that everyone can read from the beginning. Hope everyone likes the new format. Be sure to leave comments if you want to, we love hearing from everyone.
Have a great day,
Joey

P.S. My Mom will provide an update from the last 7 months soon!