Sunday, November 25, 2007
I hope everyone had a nice Thanksgiving. The holidays are still pretty emotional for us. It just doesn't feel good to sit down to dinner and not have Jess filling his plate a mile high. I did give him some mashed potatoes and gravy and some sweet potatoes but he had a hard time swallowing. Later on I tried pumpkin pie and that was a success. We were glad to have Jamie, Jahara and Jess' Aunt Claudia here. Little "Ja Ja" always keeps us hoppin' and doesn't give us much of a chance to be too sad.
Jess started to have another little seizure the night before Thanksgiving but it stopped on it's own....thank goodness. We have increased his medicine and he is not sleeping very well. He grinds his teeth and acts like his stomach hurts. It would be nice to know if it is the medicine causing it. Chris and I are not getting much sleep either.
This week the Wood River Journal printed my letter to the editor (scroll down to find the letter titled Ford Should Be Held Accountable) this week. I do hope the people that needed to hear it...read it! I won't elaborate on it because if you also read it you will get our point of view on the whole subject. I just wish the government would listen.
Hopefully, things will be calmer now. It has been a rough month. We are trying to get the video created to send off to Cleveland. They want to see what kind of responses Jess can make. They have another person going into surgery for the procedure the first week of December. We are anxious to see if that one will be a success too.
Before we know it, it will be Christmas. It has been down right cold here but no snow yet. Jess sends all of you his love.
Monday, November 19, 2007
Happy Birthday, Grandma!
Thank you, grandma! Thanks for always being in my life!
Jess has been doing ok. Not many changes and he finally has recovered from the seizure. We have increased his medicine and so far have not seen too many side effects. He has a short week due to Thanksgiving. His sister, Jamie, his neice, Jahara and his aunt, Claudia will be here for turkey dinner.
It is the season to be grateful...grateful for all our friends and family. Thank you to all of you for being part of our lives! Happy Thanksgiving!
Thursday, November 15, 2007
Please Light a Candle November 18th, 2007
The United Nations has designated the third Sunday in November every year as the official World Day of Remembrance for Road Traffic Victims.
This World Day provides an opportunity to remember the millions of people who have been killed or injured in road crashes across the world; to show solidarity with those living with injuries and disabilities from road crashes; and to call for better support for those who have been left behind: the families of road crash victims, who have to deal with grief; a search for understanding about how and why their loved one was killed or injured; a demand for justice and accountability from those responsible; and support in putting their own lives back together.
What you can do:
‘Light of Hope’. The European Federation of Road Traffic Victims (FEVR) is calling on people and organizations to light a candle to ‘remember and reflect, remember and respond’. Please support this ‘Light of Hope’ initiative. See here for more details. For more ideas for marking the World Day, please read this guide prepared by WHO, Roadpeace and FEVR.
Make Roads Safe petition. One practical action you can take during the weekend of 16-18 November is to sign and circulate the Make Roads Safe petition to your friends, family and colleagues or to the community in your place of worship. You can download a paper copy of the petition, which calls for UN action on global road traffic deaths and injuries, here. Our petition will be presented to the UN Secretary General in advance of a UN debate on a proposal for a first ever UN Conference on Global Road Safety. Help us to achieve this objective by supporting the petition.
Please share this information with anyone you know that needs remembered.
Thank you....with love!
Saturday, November 10, 2007
NOT a Piece of Cake!
Sunday, November 4, 2007
Piece of cake!
Thursday, November 1, 2007
Wisdom Teeth
I just got a phone call from the Cleveland Clinic. They are requesting a video of Jess showing the things he can do. I guess that means he still might be considered for the surgery. Whew...
I had to go to Boise this week to the Supreme Court. It seems that Medicaid wants us to pay them back the money they have spent on Jess. We recovered some auto insurance dollars and now they want a chunk of it. We won the case here but they appealed so we now have to go to Boise. There was a similar case presented to the US Supreme Court in which a girl was injured like Jess. She received a settlement from insurance and Medicaid wanted to be paid back. Luckily, she won the case because to pay them back would have taken all of the money she had to help her recover. They just don't understand the financial impact a tragedy like this has on a family. So, unfortunately, we didn't solve anything and we will have to continue at a later date. You would not believe what you have to go through when something like this happens. You think you do all the right things to protect your family and you find out quickly why they write all of the fine print in policies. Then, you find out you have to have an attorney to understand what it all means. We have a strange system. I could elaborate but it is not good for my blood pressure!
I do have good news...Jess is going to be another uncle. Joey and Angela are going to have a little boy, Breck Joseph, in February. We are so excited! I just wish they lived closer.
I will let you know how the surgery goes. Thanks for checking in!